The National Kidney Foundation and the American Society of Nephology joined in a partnership with the U.S. Department of Health and Human Services (HHS) in November 2019. Their goals are to raise awareness and education while supporting innovations in kidney care and transplant technology.
The Advancing American Kidney Care proposed new support including funding for research, innovations in home dialysis, and increased access to kidney transplants. This 2019 executive order brings hope to patients and practitioners alike.
The Health-related quality of life (Hr-QOL) patient assessment questionnaire gives patients a voice in how autosomal dominant polycystic kidney disease (ADPKD) affects their lives and health. Three domain sections include the physical effect, the fatigue effect, and emotional aspects.